Visiting the Rheumy
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| I hope you have a good appointment.
Lists are a fine idea! Just remembering to take it in with me is my problem   |
| I hope all goes well and your questions are answered. Why won't your next appt be for another year? Good luck! *fingers crossed* |
| Hope all goes well cassie |
| I hope everything goes well Cassie. Even when we are grown-ups, it's sometimes scary to go to the doctor. I hope he gives you a lollipop! |
the best of luck to you Cassie  |
All the best Cassie, great you have done a list with all your questions! I hope it does get better for you! Loads of Sheepie hugs from Charlie LOL  |
| I hope all went well at the dr's and they where able to answer your questions. I hope you are feeling better. |
| Hope it all went well for you Cassie.
Let us know |
| Have you been on any of the chemotherapy drugs yet? |
| The blood test results were not showing any rheumatoid factor, but I think that can change as to whether you are having a flare up or not? I get a flare up roughly every 3 weeks or so, sometimes lasting a few days, sometimes up to 2 weeks. I can barely move at these times. But I was OK when I had the test
He is keeping me on the same meds (Plaquenil) as he feels it is slowing down the progression. He says I won't get any worse, but probably won't get better. Hmm I'm thinking I'll show him! I'm sick of being sick. I'm going to try other therapies alongside my meds as I feel the doctors here don't do enough. My next appointment is in a years' time, they are too fully booked to do one sooner. I'm hoping to have made a full recovery by then. I've had autoimmune disorders for 3 years, that's enough for me. |
| I've been sick for 2 years but didn't get diagnosed until a year ago. I have Ankylosing Spondylitis (AS). That was the hardest part....to get diagnosed! I've been on a chemo drug for almost 5 months now. It takes most of the pain away except when I'm on my feet for long periods of time. I also get severe vomiting and diarrhea about 2 days each month.
Is your drug an anti-inflammatory? Do you have any break through pain? Massages are wonderful. My doctor suggested massages at least once a month. I haven't tried therapy yet. Autoimmune diseases are just aweful! |
| No it's not anti-inflammatory, I have to take those separately. I don't get break through pain in specific areas ie where I had an injury, but I get flare-ups where the swelling in the joints is so bad I can't move about much, pick things up, use my hands etc. That's painful. Plaquenil is supposed to slow down the spread of the arthritis to other parts of my body and slow down the damage to the joints. I guess yours is just in the spine area so you have a different type of meds? I love massage, really eases the pain. If I had they money I would definitely have at least one a week |
| I looked your medicine up and both of our meds have some of the same side effects. My chemo drug (Arava) slows down the progression of the disease as well. Yours must be very similar to Arava. Have you had any hair loss? Autoimmune diseases are sure awful, aren't they? |
| My hair was very thin before I had my diagnosis for hypothyroid, the specialist said I was 2 weeks away from being in a coma, stupid family doc was putting my tiredness down to depression for 8 months- until I finally wrote off my car because I fell asleep on the motorway But I was only awake for 2 hours a day at that point. I don't think I've had any side effects from the plaquenil. Have you had hairloss? It's hard to tell because one auto-immune disorder has similar symptoms to the other and some of those are also the side effects of the drugs! I don't know what is making me sick anymore |
| With Sjogren's and Hypothyroid together, have we talked about Multiple Autoimmune Disease groupings?
Multiple Autoimmune Disease Disorder The problem with the two you've described is they appear together in two of the groupings, Type 2 and Type 3. |
| Yes Uncle Ron, I still have the links saved |
| Yes, I have hair loss. My hairline is receding from all angles and my hair is thinning. I just got a short bob cut and it hides it pretty well. I also have hypothyroidism! Also, heavy fatigue, probably from both illnesses. It sounds like we're both going to be on medicine for a long, long time! Are you on disability? I work 4-ten hour days a week and it is exhausting! |
| No, I can't claim anything, we live with my dad so that makes our household earnings too high. Also I was self employed so that goes against me. I've been working 1 day a week for the last year, 2-3 days before that. It takes me all week to recover from that day, I clean houses. I could do a job sitting down like admin, but it's really hard to find work in my area and job hunting is exhausting, I'm doing some while I feel well enough, but a flare up usually follows |
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