Being thankful for all life (very sad)
Joshua's story has touched all of our lives and has made us hug our own little ones every night as we watched him live his short life, his last few hours, and then peacefully die March 15th. I haven't stopped crying since he was born 9 wks ago ...more in joy for how his parents have taken it and have enjoyed his days here. Then when she posted a video of him actually moving instead of the daily pics we got, I just broke down (again), so here's how this thread started. Makes me appreciate my little ones being so healthy. A short summary from her blog: Quote: Susie
I'm Susie, 22, been married just over 2 years to Matt. We have Oceana who is 21 months and Joshua who was born 7 Jan 2008. Joshua has an encephalocele - a neural tube defect - that has left a hole in his skull. His brain has grown out through the back of the skull into a membrane-covered sack. We thought it was repairable by surgery after birth, but at 36 weeks we were informed that he'd die soon after birth. He lived for 9 weeks and 4 days. He was promoted to Heaven the 15th of March 2008. This blog is about our family, our journey, and what God is doing through us and in us. We live in New Zealand, but are Americans by birth and by accent (me less than Matt on the latter). We're youth pastors with Beach Christian Centre and Matt's the Advance Work Coordinator for Marine Reach, Youth With A Mission's medical ship ministry. We're learning to take one day and one surprise and one catastrophe at a time. We love the Lord, and we want to serve Him with our lives - wherever, however, and whenever He sees fit. mnssams(@)gmail(.)com Each day of his life was celebrated on both the baby month club we belong to and on her blog. Reading her talk about him made us all smile and her joy was felt by all when he started to sprout his first tooth. You can go back to the beginning if you're interested, but it's just so touching to watch the video of this newborn ...and then read the last few days of his life (located on the front page of this blog, first entry on top). If you're interested, check out the march 19th 2008 video. It's being passed around everywhere. http://www.mnssams.blogspot.com/ |
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| I was warned about this being sad. I cried. I'm still crying. Nothing is more sad than losing a child. |
That's so sad.  Losing a child is the worst pain imaginable. Kayla's angel day is coming up next month, and this is the first year (after 8 years) that I'm remembering and okay with thinking about her instead of crying. My heart goes out to them. |
| From her update, ...a girl from our jan board set up a paypal account for her and then some money was sent individually to her ...and instead of using the money for herself, it appears she used it to save a boy a few weeks older than her son in the Philippines. Amazing. |
The video made me cry.  I loved the words at the end of the video. I can't even imagine how hard it would be to go through something like that. I pray every day that our baby is healthy. It takes special people to survive situations like that the way that they are. I'm sure her story has touched and changed many people. |
| It amazes me that someone could seem so at peace among so much bleakness, what strength she has! |
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