distal axonopathy

Attention all OES owners. Farley and I are new to the forum and would like to pose some medical questions to everyone. First Farley was diagnosed with distal axonopathy by the University of Florida in October of 2001. It is a very rare neurological condition in which the nerves die back and therefore so does the muscle. The vets at UF gave him 6 months to live, but he seemed to stabalize and is still with us today, just very weak in his hind end. Does anyone out there have any experience with this problem? I hate seeing him weak all of the time allthough he is otherwise a normal happy acting OES.
Also he recently had surgery to remove a bolla from his lung. This "blister" had burst 2 weeks ago and I almost lost him as his chest cavity was filling with air instead of his lungs. He is doing fine now post surgery, but he really scared me.
If there is anyone out there who has any experience with these conditions with their OES please let me know. Maybe you can give me some advise or my experiences can help you. Thank you.

Benjamin and Farley
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Welcome to the forum, Ben. I'm sorry to hear of Farley condition, and wish I could offer some advise. I'm sure if someone has run across the problem, you hear from them. Give my best to him.
George
I'm sorry I can't offer any information but do want to welcome you and Farley to the forum. Give your boy a big hug from Daisy and the boys, we wish him the best.
Hi,

I had thought someone would be more familiar to this disease which Farley is currently fighting. I was curious to know what it was, so did a search and found it seems to be rare. The literature is even more confusing as most of the net contains a lot of medical documents that are hard to understand.

It seems to be or is related to Hodgins and effects their lymphatic system - is that correct? One article also said something about it being related or similar to Ehrlichia in some ways which is caused by a tick bite. However it seems to be an infection within their bodies in which there are spaces such as the limbs? I am still a bit confused as to what exactly it is.

Years ago my previous sheepie, Shaggy, was diagnosed with Immune Defienciency Thrombocytopenia (an immune disorder in which the body attacks itself and causes secondary infections.) In many ways like Aids or Leukemia. Not much was known about the disease back then and the prognosis was rather dismal. I tried the conventional methods, chemo, steroids, and other meds. Eventually my poor girl was so bloated she was unable to get up and I had to question the quality of her life. I always believed knowledge is power and so I researched everything I could at the library and spoke to those knowlegable in holistic vets.

I started giving her lots of beta carotene veggies in a chicken broth that I made for her, gave her immune booster vitamins and her platelet count climbed from a low 10 to 200. A dogs regular count is 185. The vet said whatever I was doing keep it up. Occasionally Shaggy would need antibiotics from time to time but not continuously. She went on to live another 6 years and passed at the respectable age of 15 1/2.

I often tell the story because( although Shaggy's disease and Farley's are not the same ) as long as they keep fighting you don't give up hope. I don't have to tell you that however from your description of Farley - he's a fighter and has already surpassed the vets expectations. You coming here and trying to seek answers also shows you are trying everything humanely possible to help him. I feel for you as I understand how heartbreaking it is to see him go through this.

Sending lots of belly rubs from me and sloppy sheepie kisses from the boys.

Marianne and the boys
Sorry to hear of Farley's illness.

Just a thought... if they were wrong about his expected life span (thank goodness! ) perhaps they were wrong about his diagnosis?

Do you know how they came to that conclusion or what else they suspected?
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